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Whole Genome Screening in Newborns and Young Children: Is It Ethical? Are We Ready?

Whole Genome Screening in Newborns and Young Children: Is It Ethical? Are We Ready?

Introduction:

On Thursday, March 7 at 1:00 PM, Dr. Ellen Clayton, JD, MD presented a Bioethics Grand Rounds lecture for IUCB titled, "Whole Genome Screening in Newborns and Young Children: Is It Ethical? Are We Ready?" Dr. Clayton is the Craig-Weaver Professor of Pediatrics, and Professor of Law, Center for Biomedical Ethics and Society.

References:

Download the transcript for the Bioethics Grand Rounds here.
Collins, Francis S. The Language of Life: DNA and the Revolution in Personalized Medicine. Harper, 2011.
Halverson, Colin M., et al. “What Results Should Be Returned from Opportunistic Screening in Translational Research?” Journal of Personalized Medicine, Mar. 2020.
Pet, Douglas B., et al. “Physicians’ Perspectives on Receiving Unsolicited Genomic Results.” Genetics in Medicine, Feb. 2019.
Wertz, Dorothy C., and Philip R. Reilly. “Laboratory Policies and Practices for the Genetic Testing of Children: A Survey of the Helix Network.” The American Journal of Human Genetics, Nov. 1997.

Whole Genome Screening in Newborns and Young Children: Is It Ethical? Are We Ready?

Whole Genome Screening in Newborns and Young Children: Is It Ethical? Are We Ready?

Introduction:

References:

Center for Bioethics resources and social media channels