Data Ethics: De-Identification

Introduction:

On October 30th, 2019 Dr. Peter Schwartz, MD, PhD, Director of the Indiana University Center for Bioethics presented, "De-identified Data: Ethics and Regulation." He discussed updates to the Common Rule and how research with de-identified data interacts with the four major principles of research ethics.

References

Research, 45CFR §164.501. 164.508, 164.512(i) (2017).
Hicks, L. (2017). Final Rule Material: Changes to Exempt Determination Process. CITI Program.
Office for Civil Rights. (2012). Guidance Regarding Methods for De-identification of Protected Health Information in Accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule
Exempt Research, 45CFR SubtitleA Part46, SubpartA, §46.104 (2021).

Data Ethics: De-Identification

Data Ethics: De-Identification

Introduction:

References

Center for Bioethics resources and social media channels